Dystonia is one of those ridiculously complicated conditions that make it hard not only to diagnose, but to know how to adequately treat. Available medical treatments tend to be hit-or-miss at best. Botox shots and medications (assuming you can take them, which I can’t–they make me sick, as in physically ill) can provide varying amounts of relief. And exercise and physical therapy can only do so much to address the problem.
So, when some other possible way to treat dystonia comes along, my tendency is to want to share that information. In this case, we’re talking about dietary supplements.
Now, dystonia can be caused or aggravated by imbalances in your body’s chemistry. I know people with dystonia who’ll swear that a gluten-free diet has helped them.
And I just recently became aware of these videos. (And thanks Monica Masarovic for telling me about them.) They talk about dystonia, neurological disorders and toxins in the body and suggest possible nutritional supplements one can take to alleviate the problem.
Since everyone’s dystonia is different, I can’t say for sure how much diet contributes to each case. Plus, it’s essential to make sure any supplements you take won’t interact badly with any of your meds. Nonethless, it gives those of us with dystonia another treatment option to think about.
Interesting. This is the way I’ve been thinking (info on the video). After being diagnosed with Dystonia, I went searching and found numerous
issues going on with my stomach (told I had intestinal permeability; multiple polyps in my stomach, etc.). I will always believe that medication intolerance, , underlying infection, etc. helped to cause my Dystonia–mine isn’t genetic; I’ve been tested. Thanks for sharing this video.
It was my pleasure to do so. The more information we have, the better position we’re in as patients to understand how to manage the problem.
You’ll notice my use of the word “manage,” as that’s all we can do at this point. But, with any luck, perhaps someday they’ll find a way to “fix” (i.e., cure) rather than “manage” this condition.
Thanks for this site…I am going to refer a friend of mine to here. I believe the key to here treatment and recovery relies on her diet. I am a firm believer that the ketogenic diet, which is absent of gluten and has been successfully used on various neurological disorders, can be used successfully for dystonia. If you know of anyone who has speculating doing this, please let me know.
Take care everyone,
Mary
While my site doesn’t focus exclusively on dystonia, I try to post interesting news and information about it.
I’ll try to keep my eyes and ears open for more about ketogenic diet and dystonia.